The Association between Disability and Psychosocial Issues in Individuals with Leprosy
DOI:
https://doi.org/10.56359/gj.v5i2.534Keywords:
disability, leprosy, psychosocialAbstract
Introduction: Leprosy is a disease that can cause physical disabilities, which in turn contribute to the emergence of psychosocial problems in affected individuals.
Objective: This study aims to analyze the relationship between the level of disability and psychosocial problems among leprosy patients in the working areas of Jrengoan Health Center and Karang Penang Health Center.
Method: This study employs an analytical observational design with a cross-sectional approach. The study population consists of all leprosy patients in the working areas of the two health centers, totaling 47 individuals. The sampling technique used is non-probability sampling with a purposive sampling method, resulting in 42 respondents who meet the inclusion criteria. Disability levels were measured using an observation sheet, while psychosocial problems were assessed through a questionnaire. Data analysis was conducted using the Spearman Rho statistical test.
Result: The results of the crosstabulation analysis revealed that among patients with level 2 disabilities, 12 individuals (28.6%) experienced severe psychosocial problems, while 2 individuals (4.8%) had mild psychosocial issues. The Spearman Rho test indicated a relationship between disability occurrence and psychosocial problems, with a p-value of 0.043 > 0.05. These findings suggest that the higher the level of disability, the more severe the psychosocial problems experienced by leprosy patients.
Conclusion: In conclusion, the majority of leprosy patients in this study had level 1 disabilities, but those with level 2 disabilities tended to experience more severe psychosocial issues. This reinforces the notion that as the degree of disability increases, the psychosocial impact on leprosy patients also becomes more significant.
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References
Armaijn, L. (2019). Persepsi Penderita Kusta Terhadap Stigma Kusta Di Kota Ternate. Kieraha Medical Journal, 1(2), 31–37. https://doi.org/10.33387/kmj.v1i2.1705
Correia, J. C., Golay, A., Lachat, S., Singh, S. B., Manandhar, V., Jha, N., Chappuis, F., & Beran, D. (2019). “If you will counsel properly with love, they will listen”: A qualitative analysis of leprosy affected patients’ educational needs and caregiver perceptions in Nepal. PLoS ONE, 14(2), 1–15. https://doi.org/10.1371/journal.pone.0210 955
Couto Dal Secco, R. G., França, K., Castillo, D., AlHarbi, M., Lotti, T., Fioranelli, M., & Roccia, M. G. (2017). A synopsis of the history of Hansen’s disease. Wiener Medizinische Wochenschrift, 167, 27–30. https://doi.org/10.1007/s10354-017- 0590-2
Govindharaj, P., Srinivasan, S., & Darlong, J. (2018). Quality of Life of People Affected with Leprosy Disability Living in Purulia, International Journal of Health Sciences and Research Quality of Life of People Affected with Leprosy Disability Living in. 8(February), 221–225.
Grzybowski, A., Sak, J., Pawlikowski, J., & Nita, M. (2016). Leprosy: Social implications from antiquity to the present. Clinics in Dermatology, 34(1), 8–10. https://doi.org/10.1016/j.clindermatol.20 15.10.009
Gunnara, H., Yuliyana, R., Daswito, R., Juwita, R., & Sitanggang, H. D. (2020). Studi Kualitatif Keberadaan Penyakit Kusta di Desa Dendun Kecamatan Mantang Kabupaten Bintan. Jurnal Kesehatan Teroadu, 11, 84–93.
Hannan, M., Hidayat, S., & Nirmala Sandi, M. (2021). Stigma Masyarakat terhadap Penderita Kusta di Kecamatan Batuputih Sumenep. Wiraraja Medika : Jurnal Kesehatan, 11(2), 86–92. https://doi.org/10.24929/fik.v11i2.1658
Jatimi, A., & Hidayat, M. (2022). Masalah Psikososial pada Penderita Kusta: Studi Kualitatif. Indonesian Health Science Journal, 2(2), 51–56. https://doi.org/10.52298/ihsj.v2i2.29
Jatimi, A., & Hidayat, M. (2023). STRESSORS IN LEPROSY WITH DISABILITY: A SYSTEMATIC REVIEW. Proceeding of The 2nd International Conference of Kerta Cendekia, 2(1), 79-88 https://doi.org/10.36720/ickc.v2i1.498
Jatimi, Atika; HOLISUN, Holisun; AHMADI, Ahmadi. Stigma Pada Penderita Kusta Di Komunitas : A Systematic Review. Indonesian Journal of Professional Nursing, [S.l.], v. 4, n. 2, p. 85 - 91, dec. 2023. ISSN 2747-156X. http://dx.doi.org/10.30587/ijpn.v4i2.5903
Jatimi, A., Nenobais, A. N., Jufriyanto, M., Heru, M. J. A., & Yusuf, A. (2020). Mekanisme dan Strategi Mengurangi Stress pada Pasien Kusta. Indonesian Journal of Community Health Nursing, 4(1), 41. https://doi.org/10.20473/ijchn.v4i1.17540
Jatimi, A., Yusuf, A., & Andayani, S. R. D. (2020). Leprosy Resilience with Disabilities Due to Illness: A Qualitative Study. Indonesian Nursing Journal of Education and Clinic (Injec), 5(2), 95. https://doi.org/10.24990/injec.v5i2.298
Jufriyanto, M., Yusuf, A., & Mundakir, M. (2020). The Psychosocial Experiences in Ex-Leprosy Patients: A Qualitative Study. STRADA Jurnal Ilmiah Kesehatan, 9(2), 733–742. https://doi.org/10.30994/sjik.v9i2.380
Kemenkes. (2022). Menuju Eliminasi 2024, Kemenkes Ajak Masyarakat Hapus Stigma Dan Diskriminasi Kusta.
Mahanani, S., & Idris, D. N. T. (2020). Analysis Of Disability And Stigma On Self- Concept On Leprosy Patients. STRADA Jurnal Ilmiah Kesehatan, 9(2), 926–935. https://doi.org/10.30994/sjik.v9i2.410
Muhammad Najmuddin. (2021). Stigma Terhadap Penyakit Kusta: Tinjauan Komunikasi Antarpribadi. Al-Din, 60–73.
Nasir, A., Yusuf, A., Listiawan, M. Y., & Makhfudli, M. (2022). The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study. PLoS Neglected Tropical Diseases, 16(4), 1–17. https://doi.org/10.1371/journal.pntd.0010 264
Putra, Y., & Tahlil, T. (2018). Pengalaman Keluarga Dalam Memberikan Dukungan Keluarga Pada Penderita Kusta. Jurnal Ilmu Keperawatan, 5(2), 28–41.
Rai, S. S., Irwanto, Peters, R. M. H., Syurina, E. V., Putri, A. I., Mikhakhanova, A., Naniche, D., & Zweekhorst, M. B. M. (2020). Qualitative exploration of experiences and consequences of health- related stigma among indonesians with HIV, leprosy, schizophrenia and diabetes. Kesmas, 15(1), 7–16. https://doi.org/10.21109/kesmas.v15i1.33 06
Rismayanti, R., Tandirerung, J., Dwinata, I., & Ansar, J. (2017). Faktor Risiko Kejadian Kecacatan Tingkat 2 Pada Penderita Kusta. Media Kesehatan Masyarakat Indonesia, 13(1), 51. https://doi.org/10.30597/mkmi.v13i1.158 1
Siregar, T., & Ratnawati, D. (2018). Pengalaman Keluarga Merawat Penderita Kusta Dalam Menghadapi Stigma Masyarakat Di Kelurahan Limo Depok - Jawa Barat. Jurnal Ilmiah Keperawatan Indonesia [JIKI], 1(2), 63. https://doi.org/10.31000/jiki.v1i2.413
Sodik, M. A. (2016). Leprosy Patients in public perception: A qualitative study of patient confidence (dis) in the Community (Penderita Kusta dalam persepsi masyarakat: Sebuah studi kualitatif tentang kepercayaan diri pasien di Masyarakat). Journal of Global Research in Public Health, 1(2), 99–106.
Utami, R., Haryanto, J., & Sajidin, M. (2017). Path analysis of the factors that influence the prevention of leprosy clients depression in leprosy hospital Sumberglagah Mojokerto, East Java, Indonesia. International Journal of Science and Research, 6(6), 431–435. https://doi.org/10.21275/ART20174228
Van Netten, W. J., Van Dorst, M. M. A. R., Waltz, M. M., Pandey, B. D., Aley, D., Choudhary, R., & Van Brakel, W. H. (2021). Mental wellbeing among people affected by leprosy in the Terai region, Nepal. Leprosy Review, 92(1), 59–74. https://doi.org/10.47276/lr.92.1.59
Van Wijk, R., van Selm, L., Barbosa, M. C., van Brakel, W. H., Waltz, M., & Puchner, K. P. (2021). Psychosocial burden of neglected tropical diseases in eastern Colombia: an explorative qualitative study in persons affected by leprosy, cutaneous leishmaniasis and Chagas disease – ERRATUM. Global Mental Health, https://doi.org/10.1017/gmh.2021.31
World Health Organization. (2022). World health statistics 2022 (Monitoring health of the SDGs). http://apps.who.int/bookorders.
Zamparoni, V. (2017). Leprosy: Disease, isolation, and segregation in colonial Mozambique. Historia, Ciencias, Saude - Manguinhos, 24(1), 1–27. https://doi.org/10.1590/S010459702016005000028
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