Family Empowerment Program to Improve Quality of Life in Thalassemia Patient: A Case Study

Authors

  • Andan Firmansyah STIKes Muhammadiyah Ciamis
  • Neng Wiwin Mulyati STIKes Muhammadiyah Ciamis
  • Henri Setiawan School of Nursing, Fujian Medical University

DOI:

https://doi.org/10.56359/gj.v4i2.268

Keywords:

Family Empowerment Program, thalasemia, Quality Of Life

Abstract

Introduction: Thalassemia can cause major health problems in children and adversely affect their quality of life, which includes reduced physical, psychological, social, and educational functioning. A family empowerment program is a process or effort to increase the knowledge and willingness of families to maintain and improve the Quality Of Life of children with thalassemia

Objective: The purpose of this case study is to carry out nursing care for children with thalassemia and quality of life problems with the Family Empowerment Program (FEP) approach.

Method: The method used is descriptive-qualitative with a case study approach. As well as pre-test intervention and post-test intervention. Nursing care was carried out with the author for three days and the family intervened using the Family Empowerment Program (FEP) approach for three weeks. The subject of this case study is a thalassemia child with poor quality of life. Data collection techniques include interviews, observation, physical examination, and documentation.

Results: The results of the case study at the assessment stage found that An.S. had problems in the dimensions of social function and school function due to complex or long-term treatment or treatment programs and unsatisfactory interpersonal interactions. Intervention and implementation used in An.S. are using family empowerment with the Family Empowerment Program (FEP) approach.

Conclusion: The conclusion of nursing care in children with thalassemia was that during the intervention of three meetings, there were few changes that were positive for the family and the client in handling social function and school function. After the intervention of the Family Empowerment Program (FEP) approach for three weeks, the results of filling out the PedsQL questionnaire show that the dimensions of physical function are good (90.6), the dimensions of emotional function are good (95), the dimensions of social function are good (80) and the dimensions of school function are good (85).

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References

Amelia, R., Labellapansa, A., & Siswanto, A. (2018). Sistem Pakar Sebagai Alat Bantu Untuk Pendekatan Diagnosis Penyakit Thalasemia Pada Anak Menggunakan Metode Dempster-Shafer. IT Journal Research and Development, 2(2), 14–23.

Astarani, K., & Siburian, G. G. (2016). Gambaran kecemasan orang tua pada anak dengan thalasemia. Jurnal STIKES RS Baptis Kediri, 9(1).

Borimnejad, L., Parvizy, S., Haghaani, H., & Sheibani, B. (2018). The effect of family-centered empowerment program on self-efficacy of adolescents with thalassemia major: A randomized controlled clinical trial. International Journal of Community Based Nursing and Midwifery, 6(1), 29.

Firmansyah, A., Setiawan, H., & Ariyanto, H. (2021). Studi Kasus Implementasi Evidence-Based Nursing: Water Tepid Sponge Bath Untuk Menurunkan Demam Pasien Tifoid. Viva Medika: Jurnal Kesehatan, Kebidanan Dan Keperawatan, 14(2), 174–181.

Kamil, J., Gunantara, T., & Suryani, Y. D. (2020). Faktor-Faktor yang Memengaruhi Kualitas Hidup Penderita Talasemia Anak di RSUD Al-Ihsan Kabupaten Bandung Tahun 2019. Jurnal Integrasi Kesehatan Dan Sains, 2(2), 140–144.

Listyaningsih, L., Aryani, A., & Herawati, V. D. (2023). Pengaruh Program Family Empowerment Terhadap Pengetahuan Orang Tua Tentang Perawatan Anak Thalasemia di RSUD Dr. Soediran Mangun Sumarso Wonogiri. Universitas Sahid Surakarta.

LM Widyastuti, F. (2020). Pengaruh Family Empowerment Program Terhadap Quality of Life Anak Thalasemia. Universitas Kusuma Husada Surakarta.

Marnis, D., Indriati, G., & Nauli, F. A. (2018). Hubungan tingkat pengetahuan ibu dengan kualitas hidup anak thalasemia. Jurnal Keperawatan Sriwijaya, 5(2), 31–41.

Pranajaya, R., & Nurchairina, N. (2017). Faktor yang berhubungan dengan kualitas hidup anak thalasemia. Jurnal Ilmiah Keperawatan Sai Betik, 12(1), 130–139.

Supartini, Y., Sulastri, T., & Sianturi, Y. (2013). Kualitas hidup anak yang menderita thalasemia. Jurnal Keperawatan Vol. 1 No, 1, 1–11.

Theofanidis, D. (2007). Chronic illness in childhood: psychosocial adaptation and nursing support for the child and family. Health Science Jornal, 1(2), 1–9.

Wacharasin, C., Phaktoop, M., & Sananreangsak, S. (2015a). A family empowerment program for families having children with thalassemia, T hailand. Nursing & Health Sciences, 17(3), 387–394.

Wacharasin, C., Phaktoop, M., & Sananreangsak, S. (2015b). Examining the usefulness of a Family Empowerment Program guided by the Illness Beliefs Model for families caring for a child with thalassemia. Journal of Family Nursing, 21(2), 295–321.

Yanitawati, Y., Mardhiyah, A. I., & Widianti, E. (2017). Hubungan Perilaku Sakit Dalam Aspek Psikososial Dengan Kualitas Hidup Remaja Thalasemia. Jurnal Keperawatan BSI, 5(1).

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Published

2023-12-09

How to Cite

Firmansyah, A., Mulyati, N. W., & Setiawan, H. (2023). Family Empowerment Program to Improve Quality of Life in Thalassemia Patient: A Case Study. Genius Journal, 4(2), 346–353. https://doi.org/10.56359/gj.v4i2.268

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Section

Case Study